One Voice Project

the Cause, the Cure, the Care

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ALL Leukemia

A group for parents of kids diagnosed with ALL Leukemia

Members: 20
Latest Activity: Jul 15

Discussion Forum

Dennis Russo

Fevers

Started by Dennis Russo Jul. 26, 2008.

Susan Dickson

IGG 3 Replies

Started by Susan Dickson. Last reply by Annike Houtz Jul. 9, 2008.

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Julie Cutsinger Comment by Julie Cutsinger on October 2, 2008 at 11:02am
Joanne, my daughter is 6 months out of treatment now and still has all those things. Not so much the nausea but she does have frequent leg pains and diarrhea. She had them throughout treatment as well. I've always questioned her doctors about the leg pains and headaches as well. But they really have no answers for me.
PRESTON'S MOM Comment by PRESTON'S MOM on September 15, 2008 at 11:36pm

im having a lil bit okay ALOT of trouble balancing my time between preston and my daughter hannah!!! does any one have advice on how to include sibs in on this whole "cancer" journey!!
Joanne Lee Comment by Joanne Lee on September 3, 2008 at 12:02pm
Does anyone know of a child done with treatment (5 months out) that is still getting leg pains...diarreah...nausea?
DeAnna Inglese Comment by DeAnna Inglese on July 19, 2008 at 2:19am
Have a great weekend!!
Anissa Mayhew Comment by Anissa Mayhew on July 7, 2008 at 1:57am
We had to leave Alabama early as a nasty cough set in quickly and i was afraid we'd get trapped in Atlanta for treatment of fever. Can I tell you how tired I am of cancer ruling our lives?
Susan Dickson Comment by Susan Dickson on July 3, 2008 at 1:06pm
Joanne, did it help Sam's counts and keep her out of the hospital? What ways did it help her?
Joanne Lee Comment by Joanne Lee on July 3, 2008 at 10:55am
Susan - Sam had IVIG treatments for 4 months. It is not uncommon for ALL kids and many of them did/do receive it. Sam had no side effects and it definately brought her IGG levels back up.
Susan Dickson Comment by Susan Dickson on July 2, 2008 at 12:21pm
hey Annike! Did I hear correctly that Liem did the IGG test and that his level came back low? What was his level and did they do the IVIG(?) transfusions on him? They did the test on Presley, her level came back at 483 or something like that which is very low but still in the normal range.
Annike Houtz Comment by Annike Houtz on July 2, 2008 at 11:30am
I thought I'd join...looks like we may have something in common :)
 

Members (20)

Susan Dickson Katherine Scruggs Annike Houtz Dennis Russo Anissa Mayhew Joanne Lee Adria Ami Czorapinski Tiff Martin DeAnna Inglese Tracey Hernandez PRESTON'S MOM Tina Rozmeski Debbie Vessel Holly Jo Covais Mary Lynn Kesler Julie Cutsinger Susan Carter Mandy Garola Sherry
 
 

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