Cheryl's Friends

Cheryl's Groups

Started this discussion. Last reply by Cheryl Aug. 4, 2008.

Where is your child treated?

Children's Hospital Boston, The Jimmy Fund at Dana Farber Boston

What is your child's diagnosis

High-Risk Medulloblastoma

How did you hear about the One Voice Project?

a friend

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At 8:31am on July 21, 2008, Sherry Tucker said…: Dear Cheryl,

I just checked the site and saw your message you feel alone. I understand that feeling. My son Zach had a GBM (dx 7/05) and battled for ten months before being healed in heaven 5/06. Many times through his treatment I wanted to speak to someone who had went through a similar journey, but never quite got connected. Zach received 33 radiation treatments as well, but we used a form of radiation called proton beam. Because he did not survive long term, I can't speak to the long term effects, but it was clear there were no short term effects for him. He was excelling academically - which was amazing to me knowing all his brain had endured. Let me know if you would like to talk more. I am home most days and am willing to listen if it would help in any way!

Sherry Tucker

At 7:35pm on July 20, 2008, Monique Gebeline said…: No, I am sorry. I just got the email for it. Today is my birthday and I went out yesterday with some friends. Next time for sure!- Monique

At 8:52pm on July 19, 2008, Anissa Mayhew said…: Just go to the main page, scroll down to the chat window, put your name in the box and its should take you right into the room

At 8:49pm on July 19, 2008, Anissa Mayhew said…: Cheryl,
I'm sorry you're not getting the responses you need. Consider starting a forum in the main area, that message will go out to the whole network and maybe you'll be able to get some more responses. I want others to get more involved too, but we're a small group now and although it's growing, we have to be patient as people get more active.

At 8:29pm on July 19, 2008, Anissa Mayhew said…: Want to meet me in the chatroom?

At 3:54pm on July 8, 2008, Joanne Lee said…: Sam has only been sick on the way home a few times altough she has been sick in the car many many times. If at all possible, have someone drive you guys and you sit in back with Nicholas. I know the SouthEast Xway is a mess during rush hour, so it'd be great to have someone to help you. There have been times when I was alone w/ Sam. That is awful. Especially trying to find a place to pull over and help her. I carried baby wipes, clorox clean ups, water and numerous pink hospital buckets. In Boston, I don't think I'd do it alone. Find a driver! xoxo

At 9:16pm on July 4, 2008, Anissa Mayhew said…: Hi! To add friends, click on their name or picture, it'll take you to their page and then on the left under the picture will be a "add as friend" link. Just hit that and it'll send a request. The Brain Tumors group is so wonderful, don't hesitate to ask any of them to be a friend.

--Anissa

At 10:26pm on July 1, 2008, Penny Hawkins said…: No to mets.... Right side confusion is where her one side does not work like the other. Apparently since they had to cut so much to get all the tumor - they severed nerves and other things which now made her LEFT handed instead of RIGHT. Luckily - since she is young - the transition from right to left is happening pretty quickly. It effects her balance alot as well. She really has come pretty far since treatment. During treatment - Nik was very weak - very low counts - pretty much all the time. But as soon as chemo stopped you could see her get stronger and stronger. YOU WILL GET THERE TOO!