One Voice Project

From cancer parent to cancer parent

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Anissa Mayhew Female
Brandon, FL, United States

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Back to School Concerns

With back to school time upon us, please share any advice you may have for others heading back to class or concerns you may have about you own child.

FREE Tv's

As you some of you know. My mom passed away in June. I have 2 more TV's to give away. A 25or27" and a little 9" or so. If you want them they are yours. Just let me know. I will bring them to the next Lil tales or Thurs. night. If you live near St Pete you can swing by and get them!

Sibling Outing

Hey I was wondering if anyone wants to do something with the siblings of the kids being treated. I know my daughter would like that. She is 8 and so she feels left out a lot. Just let me know.

Broviac Supplies

I have a bunch of stuff for a central line. Flushes and stuff like that. Brand new. I am actually still paying for them! I will GIVE them to anyone that needs them. I just hate to throw it away. Let me know.

Down Syndrome & Leukemia

I am hoping more mother's of children with Down Syndrome or any type of syndrome join. Most survive but some like Sierra pass away. Children with Down Syndrome have a greater risk of getting Leukemia than a typical child. The treatments are more toxic to their system as well than that of a typical child so they have more hospital stays as well.
 

Profile

Where is your child treated?
All Children's Hospital in St. Petersburg and Tampa
What is your child's diagnosis
Pre-B Acute Lymphoblastic Leukemia, CNS positive
How did you hear about the One Voice Project?
I'm part of the launch team

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Comment Wall (34 comments)

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At 9:24pm on August 12th, 2008, Angie Albonico said…
Just let me know, I will try my best!
At 1:10pm on August 12th, 2008, Christy Reichert said…
anissa,
i would love to get togther after school starts call me next week any day.
love christy
At 9:22pm on August 1st, 2008, Angie Albonico said…
Ok, sorry to hear that. Well I should be there. Hope to see you soon!
At 8:52pm on August 1st, 2008, Angie Albonico said…
Yeah, It's great! Thanks, I think the world of Micah. Look forward to getting to know you better. Let me know if you are in the St Pete area. Do you go to Lil Tales?
At 3:04pm on July 27th, 2008, Jan Dorothy said…
I love this site. I followed it from your blog, which to be quite honest, don't remember how I got there. I can see OVP becoming such a great source of information and comfort for families all over the country. I specifically am thinking about a little boy in Iowa with Medulloblastoma that I'm going to refer here, especially after reading the posts regarding treatment from other readers. My son is 4 years out in August (P.T.L.!) It really would have helped especially after diagnosis to be able to talk to someone in our same shoes, to know what to expect and especially questions to ask in being the advocate for my son. It would have eliminated much frustration and anxiety. But we made it through and are sooo glad it's now behind us! Anyway, thank you for taking the iniative to start this helpful site. :) Jan Dorothy
At 5:23pm on July 25th, 2008, Anissa Mayhew said…
Oh boy, that doesn't sound good for a nice relaxing weekend at home. Give her a nice lukewarm bath, lots of fluids, and convince her that getting another fever is NOT in her best interest....and then let me know how that works out for you, never did for us! LOL
At 5:20pm on July 25th, 2008, Dennis Russo said…
yeah we got out, i guess a whole bunch of us were leaving at the same time today, so it was kind of hectic in there.
But Ryleigh is at 100.3 right now and we are trying to get her to relax and take it easy a bit but she is all excited to play with all of her toys and run around the house.
At 5:38pm on July 20th, 2008, Tina Rozmeski said…
Hey .. no we are out. Thank God. I need prayers for Zacks counts. I am praying that they are high enough for him to go to camp.
At 8:51pm on July 19th, 2008, Cheryl said…
I want to get in chat room help
At 8:23pm on July 19th, 2008, Cheryl said…
Hi Anissa,
I have been trying to reach out to get some feed back. I hardly ever hear from anyone. I am having a really hard time and could use some support from those who have come before me.
Cheryl
 
 

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